The Draft Autism and ADHD Strategy- Engagement Part 2

Closed 21 Oct 2024

Opened 9 Sep 2024

Feedback updated 24 Apr 2025

We asked

Part 1 Engagement (May-June 2024)

  • What do you think of the draft priorities for the strategy? 

  • What is working well in Kingston for autistic people and people with ADHD and what can we do better?

Part 2 Engagement (September- October 2024)

  • We shared the draft strategy and asked for people’s feedback on it.

 

You said

Over 240 people shared their views across the engagement. Below is a summary of some of the key themes. A Full Engagement Report is also available.

You said:

  1. We want to see action from the strategy and make sure this is monitored. 

  2. Your top priority was: ‘We will be given the right support at the right time, including diagnosis.’ There are long waiting times for a diagnosis of Autism or ADHD which is not good and support is also needed for people who are waiting.

  3. Practical support is needed. eg. with form filling, housing, bills or benefits.

  4. Mental health issues were a common theme in the engagement. 

  5. Training and awareness around neurodivergent conditions need to be improved.  

  6. It was clear that everyone’s experience of being autistic or having ADHD was different.

  7. Better support for families. Also, some people are worried about what will happen to their adult children who are autistic/ have ADHD when they are no longer around to support them. 

  8. It would be good to have a more child-friendly strategy. 

  9. The full strategy has too much text. More pictures or infographics are needed.

We did

We used your feedback to help shape the Kingston All Age Autism and ADHD Strategy 2025–2030.  Below is a summary of the key themes that emerged. A full “You Said, We Did” report is available, along with an Easy Read version to ensure the information is accessible to everyone.

  • The strategy includes an ‘Action Planning’ section. These actions were informed by the feedback from our survey and from talking to people. The strategy also includes a list of ways in which we will measure our progress. 

  • The action plan focuses on 5 areas of diagnosis and support.

  • A key reason to have a strategy is to bring together local organisations and the wider community to raise awareness of neurodiversity. 

  • Key principles are included in the strategy to make sure that people have a consistent and good experience of services including accessibility and reasonable adjustments.

  • We held a focus group with Experts by Experience and the Communications Team about graphic design. There will also be a summary version of the strategy which is more visual. 

What next? 

  • The Kingston All Age Autism and ADHD Strategy will launch in Spring 2025. It will be on Kingston Council’s website.

  • Partners from the Autism and ADHD Partnership Board are working together on action plans to make the strategy happen over the next 5 years.

Overview

Why are we doing this engagement? 

  • Kingston Council has been working together with local organisations and residents to write a new all-age Autism and ADHD strategy. There is also an Easy Read version on the strategy. A strategy is a document that shows what we want to do and how we are going to do it.
  • To develop the strategy, we needed input from residents. This helped us understand what is important.
  • The first part of engagement was in May/June 2024. We asked people to have their say on the draft priorities and about life in Kingston for Autistic people/ people with ADHD. Click here if you want to find out more about part 1 of our engagement.
  • We have now written a draft strategy that we hope reflects what people said.

Have your say! 

  • We are sharing the draft strategy with you to ask whether your views have been properly understood, and if the strategy will support Autistic people/ people with ADHD and their families in the best possible way.
  • If you weren’t involved with the first part of the engagement in May/June we still want to hear your ideas. 
  • You can read the engagement report from the first part of the engagement to see how we have used your ideas. 

What next? 

  • The feedback in this phase 2 engagement will help shape the final strategy and action plan. We will also do some design work on the document so it looks good.
  • When these documents are finished, you will be able to find them on Kingston Council’s website.
  • There is an Autism and ADHD Partnership Board which is made up of Experts by Experience and professionals who will work together to action the strategy.

How to get in touch with us

If you have any questions, or need any of the information in a different format, please get in touch with us by emailing us at adultscommissioning@kingston.gov.uk or call the council’s contact centre on 020 8547 5000 and ask for a member of the Adults Commissioning team to call you back.

We can also help you answer the questions on the phone if this is easier for you.

What happens next

Thank you for sharing your ideas and helping us work together to better support autistic people and people with ADHD in Kingston. 

If you have any questions or are interested in becoming a board member/ finding out more about the Kingston Autism and ADHD Partnership Board please email: adultscommissioning@kingston.gov.uk

This survey has now ended. We are looking at what you have told us and finalising the strategy. 

If you provided your email when you completed the survey we will keep you up to date about the project.  

Areas

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  • Anyone from any background

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